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... putting down what I felt in terms of some overall image at the moment today, and perhaps being terribly disappointed with it tomorrow... trying to make it better and then despairing and destroying partially or wholly... getting back into it and just kind of frantically trying to pull something into this rectangle that made sense to me... (Richard Diebenkorn)
I had the landscape in my arms as I painted it. I had the landscape in my mind and shoulder and wrist. (Helen Frankenthaler)
To paint is to know how to put nothing on the canvas, and have it look like something when you stand back. (Robert Henri)
We Are California History
Sept 17 - Sept 27, 2008
Reception: Sept. 27th 5-8pm
Participating artists:
Timothy Buckwalter, Jessica Cadkin, Paola Coda, Alika Cooper, Kamil Dawson, Narangkar Glover, Daniel Healey, Robbin Henderson, Hannah Henry, Amy Hibbs, Jeanty, Therese Lahaie, Scott MacLeod, Jill McLennan, E. Minnow, Colleen Mulvey, Claire Nereim, Russ Osterweil, Nathanial Parsons, Susannah Prinz, Jasmine Shahbandi, Julia Shirar, Andrew Ãœtt, Susan Vander Mellen, Patricia Wakida, Jeanty, Janet Silk Gabrielle Thormann.
We Are California History is a unique juried show created by Jo Ford for the Oakland Art Gallery. Jo invited artists to submit pieces that either recreated or summed up their first "California History Moment". A moment that could have been based upon personal memory as much as "historical fact".
California has often been invoked as the furthest frontier and the seedbed for the future of the country. This exhibition was an opportunity for California artists, both recently arrived and "native", to explore the relationship between their own recollections and experiences and public conceptions of the state's history.
The closing reception at the gallery on September 27th 5-8pm will include an exciting artwalk. No art will be bought or sold, however, art can be won during the artwalk activities!
This fun event is also a mini-fundraiser for the Oakland Art Gallery! Tickets will be sold on a sliding scale donation of $40 - $100 allowing participants to enter the artwalk and win a piece of art. Special limited edition prints by artist Rachelle Cohen will also be available to win during the artwalk.
If you do not want to participate in the artwalk activities, but would like to come enjoy the event, the entry is FREE.
the shocking and good news: if we want to go ahead with the implants, she would do them (pending insurance approval) at SIX months! wow. that is in the next month or so. with insurance it may take longer, especially as we'd like to do both sides at once (that may get rejected at first, but the surgeon says they always get what they want from the insurance companies, ie both sides implanted, in the end). we were really surprised, so we have a lot of thinking to do. but we essentially have to say the word and they will get the ball rolling.
also, she was very encouraging about little m's likely ability to speak/"hear" with the implants with such an early prognosis. she highly recommended the oral school where our friend mary claire works/ed in redwood city for monrovia, over other programs which incorporate more sign and which often have kids with lots more issues or later diagnosis than monrovia. you can pray for us as we begin to try to get that funded through the school district. our audiologist told us that our priority right now should be to get the IFSP (Individualized Family Service Plan, which is the school districts support for us from birth through age 3) to state which gets us services at that school. so we essentially have to prove that the districts services are inadequate for our needs compared to this program.
i guess the hardest part of the appointment was hearing some of the very scary complications that can happen. she is so small to have such a crazy operation. it's also hard having to answer so many questions about my pregnancy/labor (did you have any fevers or viruses, did you take any medicine, etc etc.) that basically make me mentally scroll through my pregnancy and labor to try and remember if there was something that could have caused this...if i should have noticed something or done something differently. that part is always difficult for me, because it has been hard not to blame myself already.
SO. lots of decisions to make, and another team to see next week. although in some ways we are content with who we've met here and feel happy to stay with this team. in the meantime, she is growing, discovering and changing daily, and we are ever so thankful she is our daughter and no one else's!
So....We take Little M for her first cochlear implant consultation. We will be meeting with a potential doctor, who we might if we decide to get implants for Little M. We are definitely headed in that direction, and talking with this doctor today will give us the opportunity to get her opinion on whether Little M is a candidate, at what age she could get implants. The surgeon will be looking at M's CT scan from a few months back, among other things.
This doctor works with the cochlear implant team at Children's Hospital Oakland. Next week we meet with part of the team from Stanford. Basically in addition to getting feedback from these surgeons on whether Little M can get implants and when, this is an opportunity for us to see which team we feel most comfortable with and who we click with (just like picking any doctor).
As we move closer in this direction, the primary conversations we have had have been the following: one, our concern that we are not trying to make Little M "normal". A number of people we have talked to about implants (and you can also hear this sentiment in the movie Sound and Fury (below)) have mentioned that now their child is normal. (Whatever "normal" is. Someone just told me a story yesterday about how someone they knew had a deaf child and then their second child was (her words) normal. I am so sensitive to that these days...) We love her completely and believe that part of who she is is her deafness. Of course we would want her ears to be healed and for her to know the joy of sound and of not only our voices but of the sounds of the world around us (As I write this sentence I hear the sound of the neighbor's granddaughter talking, birds in the trees out front, a car passing our house, a neighbor's door closing...It is amazing how much more i hear on a conscious level now, and how I wish she could hear these same noises) The reality is that even with implants M will be deaf, that anytime they are not on (in the bath, pool, at nightsleeping, etc.) she will still be unable to hear anything. We love her as she is and don't want to fix her, and we know that we will learn from and through her as she will experience this world differently than Matt and I do as hearing people.
Our second main conversation has been the fact that we want you, our family and friends to be able to speak in meaningful ways into our daughter's life. We believe that with implants she would be able to communicate with so many more people than if she was only able to sign. We desire for her to benefit from the richness of the community that we have around us (near and far), and we are depending on you to be a part of the community hat loves her, supports her, and communicates with her as she grows up. I think it would be pretty sad for her if she had to miss out on deeper interactions with our family members and friends. At the same time, we hope that she is able to learn ASL and communicate and know other deaf people that are like her.
It is hard to make so many decisions, and weigh so many options when she is only 5 months old- from this surgery to what kind of school she should go to (yes, that is already something we have to decide. crazy, no?) to the normal stuff like how to best get her to sleep through the night. It is overwhelming. Often. And yet, she breaks through the hard parts of this because she is just pretty amazing. She continues to delight us every day. She looks so intently at everything with such a curiousity and concentration, from shadows to paintings to trees. We love to watch the 24 hour Little M Channel, as the author Anne Lammott would say.
For more information on what a cochlear implant is:
http://www.nidcd.nih.gov/health/hearing/coch.asp
http://www.jtc.org/audcorner/faq/normal_child.php
http://www.bilateral.cochlear.com/32.asp
For more information on the actual surgery:
http://www.californiaearinstitute.com/hearing-device-center-california-ear-institute-bay-area.php#cochlearimplant
A good documentary that you can get from Netflix about some of the issues surrounding cochlear implants and Deaf culture: Sound and Fury